DATA RESOURCES
Available to Support Your Research
Local
Statewide
National
| DATA RESOURCES | Type of Data | How the Data Is Captured | Research Study Management | Shared Data Available | Getting Started |
|---|---|---|---|---|---|
|
OnCore Clinical Trials Management System (CTMS)
|
Clinical Trial Data, Subject Visit Tracking | Data Entry |
Xiaodong Wang – Business Data Analyst Sr xiaodong.wang@hci.utah.edu |
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Comprehensive Oncology Research Environment (CORE)
|
Subject, Participant, Consent, Path Report, Data Warehouse, and Sample (for reporting) | Data Import, Data Entry |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://code.hci.utah.edu/appinfo/clinical-research-apps/ |
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|
ItBioPath Specimen Management
(retired – replaced by CORE & LabVantage)
|
Read Only – Specimen Data and Tracking (Blood, Tissue, Saliva, etc.) | Data Entry, Data Import |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://code.hci.utah.edu/appinfo/clinical-research-apps/ |
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|
LabVantage Laboratory
|
Specimen Data and Tracking (Blood, Tissue, Saliva, etc.) | Data Entry, Data Import |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://code.hci.utah.edu/appinfo/clinical-research-apps/ |
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|
Cancer Clinical Research (CCR)
|
Abstracted Clinical Data of patients seen at HCI. Abstraction fields are both standard and/or custom-made for each disease group. Over 30 disease groups, including Colorectal, Pancreas, Breast & Gynecological, Prostate, Hematology, and Supportive Oncology and Survivorship. |
Medical Chart Abstraction, Data Import, Natural Language Processing |
Population Sciences Data Team Service Request: https://ri-jira.hci.utah.edu/servicedesk/customer/portal/13 |
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|
Genomic Experimental Repository (GNomEX)
|
Genetic Experiment Data and Files | Data Entry, Data Import, Laboratory Information Management System (LIMS) Capture |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://code.hci.utah.edu/appinfo/clinical-research-apps/ |
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|
Research Subject Registry (RSR)
|
Study Data | Data Entry, Data Import |
Population Sciences Data Team Service Request https://ri-jira.hci.utah.edu/servicedesk/customer/portal/13 |
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|
HCI REDCap
|
Study Data, Survey Data https://hci-redcap.hci.utah.edu/redcap |
Surveys, Data Entry |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://code.hci.utah.edu/appinfo/clinical-research-apps/ |
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|
Utah Population Database (UPDB)
|
Family history records, Birth and Death certificates, Utah Cancer Registry Data, Utah Health Facilities Data, and more. For a detailed description, click here: https://uofuhealth.utah.edu/huntsman/utah-population-database/data/ |
Multiple Data Contributors; Data are Linked to an Individual Person Record by Pedigree & Population Resource (PPR) |
https://uofuhealth.utah.edu/huntsman/utah-population-database/data/ For project development and completing an application for access, please contact: Marie Gibson Marie.Gibson@hci.utah.edu |
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|
Utah Population Database Limited (UPDBL)
|
UPDB Summary Pre-research Counts (No IRB Required) | Access to Specified Datasets that Doesn't Require an IRB |
https://code.hci.utah.edu/helpdocs/updbl/home.html Register with your university ID. For additional assistance, please contact: Marie Gibson Marie.Gibson@hci.utah.edu |
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|
HCI Tumor Registry
|
Abstracted Cancer Case Data (UUHSC only) | Data Entry by Registrars to National standards, including NCI, CoC, SEER |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://ri-jira.hci.utah.edu/servicedesk/customer/portal/9 |
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|
Enterprise Data Warehouse (EDW)
|
Clinical Warehouse Data | Drawn from Epic EMR and other clinical data feeds into central UUHSC resource |
Comprehensive Oncology Data & Engineering (CODE) Click on "I Need CODE Support" https://ri-jira.hci.utah.edu/servicedesk/customer/portal/9 |
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|
Utah Cancer Registry
|
Abstracted Cancer Case Data (Statewide) | Data gathered from reporting facilities across the state, including from HCI Tumor Registry |
Submit a pre-research application here: https://uofuhealth.utah.edu/utah-cancer-registry/research/ Marjorie Carter – Research Manager Marjorie.Carter@hsc.utah.edu |
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|
cBioPortal
|
Clinical and research grade sequencing results for Avatar, Foundation, Tempus and Caris. Clinical attributes for each patient are also available. | HCI Bioinformatic pipelines coupled with results from both clinical sequencing and data from CCR and REDCap. |
Introduction to cBioPortal: https://uofuhealth.utah.edu/huntsman/shared-resources/gba/bioinformatics/software/cbioportal.php For inquiries, please contact: Aaron Atkinson – Research Scientist Aaron.Atkinson@hci.utah.edu |
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|
Total Cancer Care / ORIEN / Avatar
|
Paired tumor/normal whole exome sequencing & RNA Seq as well as clinical data related to diagnosis, treatment, imaging, pathology, comorbidities, and demographics. | Molecular data is generated through ORIEN Avatar with the Total Cancer Care Protocol for a subset of participants and corresponding clinical data is also available. |
Total Cancer Care https://healthcare.utah.edu/huntsmancancerinstitute/clinical-trials/total-cancer-care For inquiries, please contact: Angela Lam – Sr. Manager, Research, Total Cancer Care Angela.Lam@hci.utah.edu |
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FlatIron
|
Abstracted Clinical Data | Data abstracted, or processed via ML, from EMR info provided by participating centers nationwide. |
FlatIron Explore: New User Request New User Request Form FlatIron portal: https://academics.flatiron.com/explore/getting_started |
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Genetic Test Results
|
Abstracted and Imported Genetic Data of patients seen at HCI. Germline data includes 20+ years of hereditary cancer predisposition genetic testing data. | Data Import and Data Entry |
Somatic and Germline Test Results: Somatic: FoundationOne, Tempus, Caris, ARUP — Comprehensive Oncology Data & Engineering (CODE) (Click on "I need help") https://code.hci.utah.edu/appinfo/clinical-research-apps/ Germline: Population Sciences Data Team Service Request — Comprehensive Oncology Data & Engineering (CODE) (Click on "I need help") https://ri-jira.hci.utah.edu/servicedesk/customer/portal/13 |
DATA TEAMS
Available to Support You
| DATA TEAMS | Services Offered | Submit a Request | Contact Information |
|---|---|---|---|
| Comprehensive Oncology Data & Engineering (CODE) | Develops comprehensive software solutions enabling HCI staff to collect and mine data from local, state, and national sources. |
Click here: https://ri-jira.hci.utah.edu/servicedesk/customer/portal/9/group/64?groupId=64 |
Comprehensive Oncology Data & Engineering (CODE) https://code.hci.utah.edu/appinfo/clinical-research-apps/ Click on "I Need CODE Support" |
| Clinical Trials Office (CTO) | Provides comprehensive support for management of clinical trials. Provides accrual details, visit details, trial details, and patient specific details of patients participating in clinical trials. |
Contact Xiaodong Wang – Business Data Analyst Sr xiaodong.wang@hci.utah.edu |
Xiaodong Wang – Business Data Analyst Sr xiaodong.wang@hci.utah.edu |
| Population Sciences Trials Office (PSTO) | Provides support for management of interventional prevention, behavioral intervention, and observational studies, with Faculty Advisory Committee approval. Provides navigation of available HCI resources including institutional databases. Population Sciences Data Support Team works closely with PSTO. |
Submit an application here: https://pulse.utah.edu/site/HCI/Pages/Population-Sciences-Trials-Office.aspx |
Navigation Team: PSTO.Navigation@hci.utah.edu |
|
Population Sciences Data Support Population Sciences Research Infrastructure Systems & Management (PRISM) |
Facilitates institutional database setup for newly created research studies, assists with questionnaire development, performs clinical data abstraction, and creates custom queries and on-demand reports. |
Click here: https://ri-jira.hci.utah.edu/servicedesk/customer/portal/13 |
PopSci-DataSupport@hci.utah.edu https://pulse.utah.edu/site/HCI/SitePages/PRISM.aspx |
| Research Administration | Provides free grant support, pre and post, through the Grants/Contracts Management Specialists. RA Administrative Assistants work with HCI investigators to provide daily support of tasks related to the investigator's lab, financial portfolio, and other research-related needs. |
Click here: https://hci-as3.hci.utah.edu/art/ |
Kris Frisby – Associate Administrative Director of Research Administration and Basic Science Kris.Frisby@hci.utah.edu |
| HCI Data-Policies |
Click here: HCI – Policies and Procedures – Institutional Data Management General Policy Number: 6.18 rev:1, July 13, 2020 |
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HCI–CODE Data-Resources version 20260519
