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Real-World Data from 5M+ Oncology Patients

Flatiron Health National Datasets for Academic Research

University of Utah Huntsman Cancer Institute CODE • Comprehensive Oncology Data & Engineering • Cancer Center Shared Resource
Flatiron Health © Flatiron Health • If you have questions, contact Flatiron @ academic-partnerships@flatiron.com

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Flatiron Health's disease-specific, retrospective research datasets are available to academic partners at no cost through a proposal-based process.

These datasets contain:

  • A robust set of treatment and outcomes-based data elements from structured and unstructured fields
  • A common data model with disease-specific add-ons for each dataset
  • EHR data from 280+ community oncology clinics and academic institutions at 800+ geographically diverse sites of care across the United States, with more than 5 million active patients

Available Datasets

Data dictionaries are available in Flatiron Explore.

National Datasets

  • EDMs — Sampled, disease-specific clinical datasets
  • PANORAMICS — Combined early/advanced stage clinical datasets with increased cohort sizes
  • CLINICO-GENOMIC DATASETS (CGDB) — Datasets linking Flatiron clinical data and Foundation Medicine genomic data

Institutional Datasets

  • Identifiable clinical datasets of your institution's patients across select disease sites

Proposal-Based Data Access Process

Step Phase Timeline
1 Submit Proposal — Flatiron Feasibility Review 1–2 months
2 Re-Submit Proposal — PI Address Feasibility Feedback 0–2 months
3 Approval — Partner Committee Review 0–1 month
4 Contract — IRB & Statement of Work 1–2 months
5 Data Delivery 0.5 month
6 Analysis Varies
7 Publication Review 0.5 month

Academic Partner Data Access Step-by-Step

Step 0 — Develop a Feasible Research Proposal Request access to Flatiron Explore for your whole research team. The quickest way to access Flatiron's national datasets is to submit a feasible proposal on the first submission.

TIP: Have pre-feasibility questions? Contact AskResearch@flatiron.com.

Steps 1–3 — Submit, Review, and Approve Proposal

  • Submit Proposal: Download and submit data dictionaries and the proposal template to request EDM, PANO, or CGDB data through Explore.
  • Review and Re-Submit: Flatiron's review team, comprised of research scientists and research oncologists, will review your proposal for feasibility and provide feedback to help you develop a feasible project.
  • Approval: Feasible proposals will be reviewed and approved by your institution's partnership steering committee.

TIP: Submit proposals by the 1st of each month for quickest feasibility review.

Step 4 — Contract and IRB Flatiron will upload a Statement of Work for your approved project to Explore and provide instructions on how to execute the agreement. IRB documentation is also required and must be uploaded to Explore before data delivery.

Steps 5–6 — Delivery and Analysis Flatiron will deliver data via Explore. Your contract gives you data use rights for two years from the data delivery date. Data use is limited to the analysis described in your approved proposal.

TIP: Resources to get started with analysis quickly, including R packages, are available on the Flatiron Knowledge Center.

Step 7 — Publication Submit final drafts of publications (manuscripts, conference posters, and abstracts) for Flatiron review via Explore 10 business days before the submission deadline.


CODE Open Office Hours

Held Virtually 1-2 pm every Thursday.
Must Join via the Teams application (not through a browser).
Click Join Teams Meeting

Contact Us

CODE Shared Resource
Director

Andrew Post, MD, PhD
Andrew.Post@hci.utah.edu
801-585-0600

CODE Shared Resource
Associate Director

Shirleen Hewitt, DBA, MBA, MS
Shirleen.Hewitt@hci.utah.edu
801-585-5972

Governance

HCI Senior Director Oversight
Aik Choon Tan, PhD

Shared Resource Advisory
Committee Chair

Howard Colman, MD, PhD

Shared Resource Advisory
Committee Members

Shannon Buckley, PhD
Nicola Camp, PhD
Christopher Fillmore, PhD
Anne Kirchhoff, PhD, MPH
Jessica Moehle, CCRP
Mark Oberg
Melanie Ward